Home > DNA and Cell Bank > About the DNA and Cell Bank
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Since its creation in 1990, the DNA and Cell Bank at Genethon has been devoted to encouraging advances in genetic research by placing the high quality services of its cell and human products bank at the disposal of the scientific community.
With the availability of genome maps, the DNA and cell collection of patients and their families affected with diagnosed genetic diseases (Mendelian, chromosomic accidents or poly-factorial disorders) has become the principal factor limiting all genetic studies. Each of these elements - whether medical diagnosis, family, DNA and/or cell - is necessary and indispensable to carry out such studies.
The objective of the DNA and Cell Bank at Genethon has always been to store the memory of genetic – mainly neuromuscular – diseases and to provide the human material necessary for the work of research teams, regardless of the pathology.
It now functions as a service provider for the scientific and medical community as a whole. The Bank collects blood samples that originate from sample collection campaigns run by research teams, biologists and geneticists in France and abroad.
The management and traceability of the samples (processing, storage, distribution and partnerships) are provided by the database known as ‘Stocky’ – specially developed at Genethon for the DNA Bank.
A charter governs the relations between the DNA and Cell Bank and its users. This is conducted in compliance with ethical principles governing the collection of human products, and the legislative and regulatory provisions governing the removal, processing and storage of these products and information associated with them.
All requests for collaboration with the DNA and Cell Bank should be in writing and addressed to Dr Safaa SAKER-DELYE [saker@genethon.fr] after which they will be examined by the outside arbitration committee. After acceptance of the dossiers, a partnership agreement will be drawn up specifying the rights and obligations of the parties.
The Genethon DNA and Cell Bank has been certified according to the AFNOR standard NF S96- 900 since June 2009.
- Charter of the DNA and cell bank
This charter governs the relations between the DNA and cell bank and the persons using its services (7 pages - 487 ko).
- National Organization for Rare Disorders (NORD)
Federation of over 140 non profit organisations working for people with rare diseases through research, education, assistance and support programmes. The NORD website gives access to the biggest database on rare diseases. Over 1100 diseases are listed (research by alphabetical ordre, name of the disease).
www.rarediseases.org
- Eurordis
Eurodis is a federation of associations co-founded by the AFM to promote the necessity for Europe to have a European regulation on rare diseases and orphan drugs. On its French/English website, Eurordis gives access to information about member associations, European institutions and regulations.
www.eurordis.org
- Consultative Committee on Biological Resources:
This is formed by representatives from research organisations as well as ministries and public administrations involved in life sciences. Its aim is to promote centres which can offer access to high quality biological resources.
www.crbfrance.org
- EuroBioBank :
Financed by the 5th Framework Programme of the European Commission, this consortium is a European network of banks of human biological material (tissue, cell and DNA) for research in the field of rare diseases.
www.eurobiobank.eu/index.htm
More information :
Charter
(7 pages, 487 ko)
EuroBioBank
www.eurobiobank.eu
Eurordis
www.eurordis.org
Consultative Committee on Biological Resources
www.crbfrance.org
National Organization for Rare Disorders (NORD)
www.rarediseases.org
BIOBANKING
9-11 mars, 2007 - Cascaïs, Portugal
(7 pages, 60 ko)